February 8, 2001
"Hospital without Walls"
Could Become a Jail without Bars
By Daniel B. Newby
When relatively healthy people voluntarily seek mental
health care, they go to the office of a psychiatrist,
counselor, or social worker. When severely ill individuals who
are a danger to themselves or others need care, they are
admitted to a hospital for the mentally ill.
Organizations like the National Alliance for the Mentally
Ill (NAMI) and the Disability Law Center (DLC) are concerned
that in Utah there is no intermediate setting for people who
are mentally ill and in need of treatment, but not so crippled
by their conditions that they need to be hospitalized. The DLC
points out that Utah has only one already overcrowded facility
for inpatient commitment, and the Utah Division of Mental
Health (DMH) estimates that it costs $300-500 per day to treat
each hospitalized patient.
Enter PACT — a Program of Assertive Community Treatment.
Proponents of PACT, which has been adopted in many states,
call it a "hospital without walls." A PACT team can assess
whether a person is in need of its services, make a diagnosis,
form a treatment plan, and prescribe and administer
medication, all in the comfortable setting of the patient's
own home. Think of it as the home health care of mental
illness. And the cost? Only $50 per patient per day. The
Legislative Executive Appropriation Committee will shortly
consider the DMH's proposed budget, which includes enough
money (when federal matching funds are included) to develop
four PACT teams.
Why would anyone object? Because the freedom of many Utahns
could be at stake.
DMH estimates that nearly 150,000 Utahns suffer from
serious mental illness—almost one out of every 15 Utahns. Many
of these will be treated by private providers, but a huge
target market still remains for PACT. PACT teams are small
(each team serves a maximum of 120 patients) and designed to
function with relatively high autonomy, which makes PACT very
easy to scale upward in size. At $50 per day per patient PACT
costs $18,250 per patient each year. That's no small sum if
you're planning to treat 100,000 people, but adding a few
teams each year would hardly show up on the state budget
radar.
DMH has been circulating and promoting a set of standards
used by NAMI to encourage the development of PACT and are used
by PACT teams around the nation. Based on these PACT
standards, admission criteria include "significant functional
impairments" such as "inability to be consistently employed at
a self-sustaining level or inability to consistently carry out
the homemaker role (e.g. household meal preparation, washing
clothes, budgeting, or child-care tasks and
responsibilities)." Lack of good personal hygiene, not
obtaining medical care, and not meeting one's nutritional
needs are other indicators that a person might need PACT's
services. If one in 15 people are in need of care, a lot of
bad housekeepers could find themselves subject to involuntary
psychiatric treatment, which can include the administration of
psychotropic medication.
But who says PACT is involuntary? Well, PACT standards do
not require that a patient's consent be obtained before he is
admitted to the program. In fact, some other states refer to
PACT as IOC — Involuntary Outpatient Commitment. These standards
also state, "clients to be served [may be] individuals who...
because of reasons related to their mental illness, resist or
avoid involvement with mental services." However, the
standards also stipulate that the program cannot violate state
and federal law regarding patient's rights. In Utah,
involuntary commitment is temporary, and a patient must,
because of mental illness, be "likely to injure himself or
others if not immediately restrained," to be committed.
Interestingly, in a June 8, 1999 memorandum, Robin
Arnold-Williams, Executive Director of the Department of Human
Services (DHS), recommended to Governor Leavitt that
involuntary commitment statutes be loosened to include those
who are "gravely disabled," and in "significant need of
treatment." This memo coincidentally recommended the funding
of four PACT teams beginning in FY 2001. Loosening the
standard for involuntary commitment would allow PACT to treat
patients presenting a marginal danger to themselves or others
and would also open the door to involuntarily treat people
who, like the bad housekeeper, merely differ from society's
accepted norm.
This is a major, legitimate controversy that deserves to be
debated by the legislature and reviewed by the governor, but
instead it is beginning with a simple budget appropriation.
Loosening commitment laws will require action by the
legislature and governor, but the import of such a change may
be lost if they are unaware of the new and powerful delivery
mechanism PACT represents.
PACT coupled with relaxed involuntary commitment has the
potential to obliterate vital individual rights. If our
legislators approve PACT, it should contain stringent
protections for the individuals impacted, including the right
to a trial by jury prior to commitment. And until our elected
representatives are prepared to examine the program, no funds
should go to starting it.